Here is a quick and needed update for everyone wondering and asking about Scott. As some of you may know, On June 5, Scott had extremely low blood pressure and a terrible headache. The techs at the Wellness Clinic could not "stick" him for his IV- So we took Scott to the ER at MD Anderson. There we waited ALL day for an MRI. We finally had the scan around 11pm that night and the results showed that Scotts tumor was pushing the right side of his brain into the left. He had what they call "Mass Effects". His tumor had shown significant growth since the previous scan, exactly one month prior. So they pumped him up with steroids to help reduce the swelling, and they sent us home.
We went for a follow up visit with Scotts Oncologist the next week at MD Anderson. There they reviewed the three previous scans and once again came to the conclusion that his tumor has just taken over pretty much the entire right side of his brain. Since there is still no other form of treatment for his type of tumor, because we have already exhausted all options in the last 4 years, we spoke about the option to put Scott into Hospice Care.
We met with a social worker that day and she went over everything that Hospice entails, and after a few days of thought, we decided that would be the best route at this point for Scott. So as of this past Monday, Scott is officially on Hospice Care. He has taken a serious turn in the last few weeks, since June 5. He is no longer able to care for himself or do much on his own. He doesn't have much feeling or strength in his entire left side of his body, so it makes it difficult for him to get around. He sleeps about 20-21 hours a day, and he is extremely restless at night.
Keep Praying for Scott's sweet soul. It is very hard to watch this AWESOME man take this downturn as this tumor is taking over his brain. He has been so positive throughout this 4 year battle with this nasty and aggressive Glioblastoma. I am thankful we were able to spend those 4 years with him - he is one of the very best men I know. God has big plans, I may not like them, but I know they are for his reason.
These are the last three scans, you can see the tumor really is taking over the right side of his brain...
I have to say, over the last several weeks we have had so many friends and family here to support us, and I am so grateful. I couldn't do this without my mom, she's the best example and support - unfortunately she knows exactly what I am going through as she experienced this just 5 years ago with my dad. My mom is here any second that I need her and I am so thankful. I have amazing in-laws that can stop anything they are doing to help with Scott - its a true blessing, because things can get so hard, physically & emotionally. They have a great love for their sweet son, and its obvious- they will do anything for him! My friends and family are amazing too - everyone is willing to take Tyler so that he can get out and play with their kids - he doesn't know what to do with himself, with all of these daily playdates. And recently my friends Stacey and Lisa started a fundraising page where SO MANY amazing people have contributed to Scotts Care - its truly unbelievable how many people have supported us through this - Its awesome to see that some people who don't even know our family have contributed to helping heal Scott - wether it be donations or just prayers and words of encouragement. Thats the power of our mighty God. He will always provide. I cannot thank everyone enough for all that has been done for us. Somehow it makes this process a little easier.
THANK YOU to everyone that has been with us on this journey, and keep praying.
Much love from The Wilkins Family,
Candace
